NTM Northwest Support

A Pacific Northwest support group for sufferers of Nontuberculous Mycobacterial (NTM) Infections and Bronchiectasis

You are not logged in.

#1 2021-07-16 12:34:11

CynthiaF
Support Group Chair
From: Bellingham
Registered: 2016-05-30
Posts: 191

rarediseases.org

just like it sounds...head of policy Rachel R Shera

might be a source of financial help or info of folks not being able to get treatment they need...OFF LABEL DRUGS ie treatments that are not approved for our specific disease, but are effective.  Insurers usually do not cover and this can be the case for us with regards new discoveries that were on trial for another condition.  These are often VERY expensive but don't give up hope.  Ways around it.

Offline

Board footer

Powered by FluxBB